First, I need to share with you a conversation I had with my 16 month old a few days ago.
Yes, it was a conversation.
Me: Conor, please get off my lap- I need to poop. Gotta run to the bathroom.
Conor: Poop?
Me: Yes.
Conor: Bye!
And so begins the childs' understanding of living with a parent who has Crohn's. :)
___________________________________________________
Today was an excellent day. I feel incredibly optimistic. This morning I met with my new GI doc! (Sniff sniff...I will miss you Dr. R, but hope you are doing well across the country!) My husband came with me- he is an excellent sidekick to have in these situations- if we were superheroes we could be called... LooGirl and #2...HAHAHAHA. Anyways...
My new doctor is in Providence, RI- affiliated with a teaching hospital, professor at Brown, truly a standup guy and we bonded because he too has fraternal twin boys! I have been having some serious low moments when it comes to my disease. When you have tried over a dozen different medications, have never been in remission (except when pregnant), and the last time you tried a new med you ended up with lupus, well, you start to get sad and think you will never not be going to the bathroom a gazillion times a day!
The appointment was positive, I learned a lot, I appreciated his style of patient care, and I feel like I have some options to work with. In addition, he was incredibly positive about my alternative forms of treatment, including acupuncture and my ever changing diet experiments.
Speaking of diet- have I shared this with you before?!
I owe this find to Pinterest: http://glutenfreefix.com/
Have tried about 5 recipes from this site so far...with 4/5 being delicious and truthfully, one being so gross my husband spit out the dessert in his hand and gave it back to me. What? That's what happened!
I have said this before, living with Crohn's, is like living with an eating disorder. I want to eat. I want to eat everything. When I eat perfectly (for me), which is dairy free and lactose free, food stays in me longer, but then it starts to make me feel uncomfortable. I get so used to having an empty feeling in my gut that I start to panic when I feel full!
Here's to hoping I can get past that feeling and move forward with new attempts at disease control. Please note, when I say disease control, of course I mean my disease, but then in one hot second my brain jumps to bio-control, invasive insects and plant disease. Really brain? From one odd thought to another.
Have a lovely weekend! Eat Well.
Hi,
ReplyDeleteI LOVE your Blog!! I just started following it today. I have been diagnosed with Crohn's when I was in the 5th grade and now I am 30! I have been dealing with this Crohn's stuff for a LONG time!! Your blog has offered me inspiration and humility. :)
However, I face new challenges ahead as I am preparing to get married and having babies of my own. But, my fiance and I have many questions for the doctors regarding pregnancy...do you have any advice? Thanks.
Tia :)
Tia,
DeleteObviously the babies are keeping me busy! Email me at roandtwins@gmail.com and we can chat!! I would love to help you/give you advice in any way I can.
Rosie
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