Friday, September 7, 2012

New Doc!

First, I need to share with you a conversation I had with my 16 month old a few days ago. 
Yes, it was a conversation.

Me: Conor, please get off my lap- I need to poop. Gotta run to the bathroom.
Conor: Poop?
Me: Yes.
Conor: Bye!

And so begins the childs' understanding of living with a parent who has Crohn's. :)

Today was an excellent day. I feel incredibly optimistic. This morning I met with my new GI doc! (Sniff sniff...I will miss you Dr. R, but hope you are doing well across the country!) My husband came with me- he is an excellent sidekick to have in these situations- if we were superheroes we could be called... LooGirl and #2...HAHAHAHA. Anyways...

My new doctor is in Providence, RI- affiliated with a teaching hospital, professor at Brown, truly a standup guy and we bonded because he too has fraternal twin boys! I have been having some serious low moments when it comes to my disease. When you have tried over  a dozen different medications, have never been in remission (except when pregnant), and the last time you tried a new med you ended up with lupus, well, you start to get sad and think you will never not be going to the bathroom a gazillion times a day!

The appointment was positive, I learned a lot, I appreciated his style of patient care, and I feel like I have some options to work with. In addition, he was incredibly positive about my alternative forms of treatment, including acupuncture and my ever changing diet experiments.

Speaking of diet- have I shared this with you before?!
I owe this find to Pinterest:

Have tried about 5 recipes from this site so far...with 4/5 being delicious and  truthfully, one being so gross my husband spit out the dessert in his hand and gave it back to me. What? That's what happened!

I have said this before, living with Crohn's, is like living with an eating disorder. I want to eat. I want to eat everything. When I eat perfectly (for me), which is dairy free and lactose free, food stays in me longer, but then it starts to make me feel uncomfortable. I get so used to having an empty feeling in my gut that I start to panic when I feel full!

Here's to hoping I can get past that feeling and move forward with new attempts at disease control. Please note, when I say disease control, of course I mean my disease, but then in one hot second my brain jumps to bio-control, invasive insects and plant disease. Really brain? From one odd thought to another.

Have a lovely weekend! Eat Well.

Saturday, July 21, 2012

Team Semi Colon!

The fundraising has begun......

WOOHOO! Join Team Semi Colon as we raise money and awareness to find a cure for Crohn's and Colitis! It has been three years since we participated, having the twins took over our lives, haha, but on October 13th, the walk will be in my hometown of Springfield, MA!

 In 2009 this was our stellar team:

It certainly has grown since 2009- would you like to join our team?! We'd love to have you!
Perhaps you would like to make a donation?

Tuesday, July 3, 2012

Little Men

The cuties are starting to look like little men! Yes, those are shorts. The boys have very tiny legs, like their mamma. We are starting to really enjoy summer now, and the boys are loving their outings- hopefully a trip to the beach (all of 10 minutes away) is in their near future! Bring on the Immodium!