Showing posts with label crohn's casts. Show all posts
Showing posts with label crohn's casts. Show all posts

Sunday, April 12, 2009

Remicade, Treatment 2



HAPPY EASTER!

It wouldn't be Easter if I didn't blow up a Peep in the microwave! And let me tell you, trying to capture it on camera was no easy feat before it deflated!

So, last Friday, April 3rd, I went in for my second Remicade treatment. It took about 3 hours. Same slow drip to begin that speeds up over time. It was uneventful, yay; no allergic reaction (and I hear that usually treatments 2 and 3 are when you would react: fever, can't breathe, break out in hives, etc.). My husband came with me and destroyed me in rummy...

The real excitement happened 5 days later. Around 3am on Tuesday evening I woke up in horrible pain- the muscles and joints in my legs were on fire, as if someone were constricting my legs until I could not breathe. The intense pain only lasted an hour. Through Wednesday, the aches and pain traveled throughout my body. When I woke up, my lower jaw hurt (could not chew or open my mouth), my wrists hurt (as if I had done hundreds of back handsprings, yes, I was a gymnast), and my knees still had remnant of the pain the night before. I felt very shaky throughout the day, very weak and achy. This was not a "I worked out and my muscles hurt" kinda achy- it was "a bus slammed into me" kinda achy. The pain got progressively better throughout the day, completely gone in 24 hours.

Last night, unfortunately, the terrible leg pain started back up, just in my right leg, and lasted only an hour and a half. Elevation and anti-inflammatory helped a great deal. BUT cutest thing ever, bright light in a very dark moment...my mini schnauzer, Finnegan, knew my legs hurt. She knew I was uncomfortable. While I was trying to breathe and find a level of control and meditation, Finnegan went under the blankets and layed across my legs! She put her cute little head right on my knee and fell asleep. I am grateful for my furry angel.

Question: Has anyone found anything to counteract these aches? Any nutritional or herbal supplement perhaps?




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Monday, March 30, 2009

Crohn's Casts - Take a Listen

Well, it has been 10 days since the first Remicade treatment, everything is going great. From reading other testimonials, I was expecting to be extra fatigued and achy the few days after, but no such thing. I am still not sleeping (thank you prednisone) but my house is incredibly clean, I have documented every book I own, I am caught up on all my filing, sorted through all my quilting fabric- you know what it's like! You make up stuff to do at 3:30am! Everyone handles medicine differently...

On Wednesday into Thursday evening I did have a bit of a scare. This sounds funny to say out loud, but not so funny at the time- my skin was painful! Has anyone else had this happen to them? It hurt to touch my entire upper body. As if I had bruises all over my chest, arms, abdomen and back. It hurt to wear clothes, hurt to move. My skin was incredibly sensitive. Doctor's visit on Friday- thought I had shingles (viral infection of the nerve roots, pops up when immunity is low)! Follow up with doctor, no shingles, phew! So far we do not think this was a reaction to the drug, just more inflammation. ..

Note: It is not uncommon for individuals on Remicade to develop shingles- check out this article and supporting research.

Crohn's Casts

For those who have not found these yet, these are especially good for the newly diagnosed or friends and family who want to better understand the disease:


I found these very well done, hitting topics that are very relevant and important to consider for an individual living with Crohn's. Turn up the volume! Bottom line: Be mindful of what you put in your body...